Sunday, September 9, 2012
June 1 2012
After a lot of consideration we decided to go to University of Michigan's Mott's Children's Hospital in Ann Arbor. We called and talked to a wonderful nurse practitioner for the pediatric cardiology area of Mott's Children's Hospital. She spent well over an hour on the phone with Adam and I, writing down our information and answering all our questions. We told her we weren't really sure where to even begin and what steps to take next after receiving such news. We just knew we would like to tour the hospital to see what they had to offer us. She was MORE than helpful! We set up an appointment for the 28th of June.
June 12 2012
We received a call from the genetic counselor informing us that there was "extra material" on chromosome 8 and they needed permission to go on with further research. She explained that it could be "junk material" or it could be one of the reasons causing our baby's CHD, or it could be something "else" that they just can't see yet without further research and results could take up to a week. We agreed to let them go on with the research.
Curiosity got the best of me and I began to research what this all could mean... I should NOT have done that. It left me feeling even more helpless and depressed. Just after getting news that the amniotic fluid showed "nothing" was wrong they call back with this news, it was just another set back for us. Leaving us with MORE uncertainty and unknown answers to our questions we were feeling hopeless and lost once again. Our hearts are heavy!